Tuesday, March 12, 2019

On Bone Marrow Aspirations

It may serve a good purpose to share some notes on bone marrow aspirations. I've had four so far.

You lie face down and have marrow drawn from a hip bone for testing. The whole procedure takes about half an hour, followed by another half hour of rest on your back before getting up. It's good to have a book along for that.

My doctor explained that despite local anesthesia I'd feel sharp pain three times for one or two seconds each. And so I did. In contrast, if I stub my toe while barefoot I see stars for about ten seconds and endure slowly diminishing agony for a minute or so. With a typical bone marrow aspiration, three short jolts and you’re in the clear. My first two were typical.

It's only fair to report that the third went wrong. The needle must have struck a nerve, or so the doctor speculated when we compared notes, because it was a royal pain in the hip for most of the hour. Not quite a crisis, and yet a passage of heavy breathing and dark thoughts.

But you must hear about the fourth. This was done by my thirty-something outpatient chemo doctor, who had met my sallies on the subject of Stage IV with unerring tact. I knew her competence, but it began to seem that she’d take forever preparing to do the deed. Then, just as I re-tightened my grip on the end of the mattress, she said it was over.

I have no reason to doubt that she jabbed me; after all, I got the biopsy report. But I can't say it made much of an impression. May others be so fortunate.

Finally, here are my two best tips on bone marrow aspirations:

If you learn that you must have one, plan something fun to do afterward and keep your mind on that.

If you’re granted a life free of bone marrow aspirations, don't go and spoil it by stubbing your toe.

Tuesday, March 5, 2019

Reconciled but Hungry

After the family doctor pronounced my test results “awful” and sent me in search of a diagnosis, I made the rounds of specialists as many people do, learning along the way that a doctor's eyes might be made to bulge by the merest lab report.

Finally, a veteran hematologist and old acquaintance got to the root of the matter. A bone marrow biopsy showed twice the normal number of lymphocytes, half of them malignant. This was the work of a lymphoma which treatment can only set back, not cure. A CT scan painted a clear picture of Stage IV.

Early in adulthood I had fallen into the habit of visualizing my life as a finite arc in time. I never entirely forgot that I was headed somewhere on a constantly shortening journey. Mortality was my acknowledged lot. So I couldn't say this allusion to it came as a shock, though it did make a riveting tap on the shoulder. I accepted that I would very probably break with the family tradition of longevity and must put my affairs in order. At the same time, I felt that a settled, fatalistic spirit of gratitude for life was the best ground on which to make a stand. I still do.

Hospital mattresses proved excellent. Nor was the blood patient's unrestricted diet lost on me (though I can say so only because I escaped the severe side effects of treatment that many suffer). A stroll past the other wards, with their genres of malady posted in the corridor, always brought me back to mine untroubled by envy. Meanwhile, the sense of contented reconciliation to mortality bolstered my spirits; and my spirits, as I believe, bolstered my prospects.

The good doctor’s concoction of chemotherapy and monoclonal antibody cleared me of detectable malignancy in short order. Still it was understood that the disease would be lurking somewhere even though it no longer showed up. When, on leaving the hospital to continue treatments as an outpatient, I asked whether there were any cautions to observe in my daily life, the doctor gently replied, "Just do what you want to do." And with that valediction to ponder, off I went. The lymphoma is supposed to reassert itself eventually, but after five years in remission I got the news that with any luck I’d die of something else first. My wife and I went straight to a nice restaurant for a little celebration.

Recent tests show that the cancer is no longer in remission, but in a “smoldering” state at a level that does not call for treatment. My first doctor, whose own cancer proved more insistent, will not see how the journey ends. However, his memory will go the distance in a couple of grateful hearts. My affairs now drift in and out of order, and the two of us continue to enjoy our garden, our occasional travels, our children’s lives, and our own appetites.